OP Supporting Member (50+ posts) Joined: Nov 2014 Posts: 73 | Hello, I am now 2 weeks out from treatment. I stopped Peptamen and began blending foods and using Liquid hope and real foods prepared meals. And even made own peach oatmeal yogurt smoothie.
I saw a swallowing therapist last week and she is going to try to get Dr order. Saw RAD Dr he thinks I'm doing pretty good. I am still fatigued and sleeping a lot.
Recently I have noticed a really bad taste which seems to be coming from the base of my tongue. I spit and rinse with regular water. I have had a dry mouth lately. I am not able to swallow just yet.
Does anyone else have experience with tumor giving off a bad taste or large scab in area of where tumor was? This just began yesterday.
Thanks to all for your help.
Last edited by larry6905; 02-09-2015 07:06 AM.
T4,N2,MO SCC of the BOT hpv+ Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015 PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015 Clear 4.9.2015 PET/CT H&N. 11mm low SUV nodule RUL on lung PET/CT 2nd PET 8.25.15 10+ numerous nodules bi later lungs 9.9.15 Lung biopsy SCC Org BOT Avastin and Torisel clinical trial 11/15-3/16 MDA Home 5/23/16 Pet scan 50% growth & +SUV Opdivo 6/2016 Synthroid 100 mcr Scan tumors shrinking Teeth decay 9/2016
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