Thank you all for your posts and encouragement. We will plod along as best we can. The funny thing is John hasn't felt any discomfort from the cancer all this time -- no shortness of breath, no pain, etc. All the discomfort has been from the side effects of the treatments. I know this situation won't last forever, but if the rads can keep the nodes and lesions manageable, then they are worth it.

A particular shout-out to Hellion who is in the middle of his trial and who has taken time to support me. Thanks, I wish you the best of luck.

The waters are a bit rough but the ship is still sailing.

Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.