Debbie, I would say Jim is doing well at only one week post treatment. I know it can be personally frustrating, not the kind of person he was before, but this recovery is more like a marathon, not a sprint, so it takes time. It took me quite a while to get over these facts, but looking back, I did quite well with what I went through, and sometimes that is encouraging, and hope Jim finds the same. Although I didn't join any social media or support groups until several years after my initial cancer, I find they are good to hear what others, unfortunately, have gone through, and that you are not alone.

SPOHNC, Support for People With Oral and Head and Neck Cancer, have monthly support group meeting in local chapters throughout the country, which I find helpful.

https://www.spohnc.org/local_chapters.php

As far as the salt taste, it could be from number of things. Including altered taste, smells, from radiation, chemo, being dehydrated, even thrush alters taste. Mucus, sinus fluid, tears, contain salt, being dehydrated concentrates the taste of salt in the saliva. Usually, several weeks after radiation treatment you have excess mucus, some call rope mucus, so that could be a source. To help with odd tastes, a stronger tasting drink, lozenges, such as citric, grape, root beer, before eating may help be a scapegoat. Maintaining proper oral care is also important, and helps with taste, reducing risk of infection. Rinsing, brushing, drinking liquid before eating may help.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs