 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | Thanks Nancy14 and ChristineB for your suggestions. I guess we will try and take it slowly so that he won't feel he has "failed." I also spoke to the visiting nurse who is going to try and arrange for a dietitian to come see John and give us pointers on how to manage the transition.
Nancy, I am so glad you are talking to the other doctors about John's procedure. Even doctors have told us that they don't often come across people who have a blocked esophagus. In response, I always say that people just give up and go away since it looks like nothing can be done.
John's IR will be presenting his new technique at an Endoscopy Conference in Europe sometime this year. It will also be published soon, I think.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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