Hi Deb - welcome to the family. There are lots and lots of people here who have been through what your husband - and you - are going through and we're all eager to help. Please ask any and all questions no matter how insignificant they may seem. Someone will have good advice.

I too had an unknown primary and came through treatment very well with no recurrence. I'll keep the good thoughts flowing your way!

PS dunno where you are in our state but if you're in or near LA I'm happy to help in any way I can.

David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18