 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Kate,
I had the most horrible bloody, oozy skin for a couple of weeks and still almost 2 years (minus 4 days!) I have a dark tint to my skin in the radiated area that makes my once fat chin (from lymphodema) look fat although it is only white and stands out.
My throat still hurts but only when it is dry or I eat something too salty like peanuts, chips, etc. (adding anchovies from my pizza the other night).
As you fellow Minniesotan said...Hang in there as it will get better.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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