 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Major cancer centers have their own PM&R group. There is also a program called ACE, after care experience, for younger survivors. Lastly, the new STAR (Survivorship Training and Rehab) certification is the minimum acceptable level of knowledge for oncology rehabilitation.
PT will only get you past your current condition if you don't do the work set out in your rehab plan. Even with diligence, I have had well over a dozen PT cycles. The only shortcoming, to me, is they start out gradual but rarely advance to the point of sustainability. Just my opinion.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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