I think around 25-30 days after treatment were the absolute worst. All the excitement and activity of treatment is over and the deafening quiet sits in. Athe mind is racing with every pain or lump bringing the most fear, because of the unknown. Of course, situational depression will most surely set in.

I had my feeding tube for about 6 months plus I had 3 bags of fluid and TPN feedings through my mediport during the 6 months.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023