Nick,

I'm sorry to hear the news. This is a brief quote from the California State Attorney General.

"Hospice care is designed to comfort and support patients and their families when the patient can no longer benefit from cure-oriented medical treatment. The typical hospice patient has a life expectancy of six months or less. While hospice often is understood to be a "place to go when you are dying," it more typically allows a dying patient to receive care at home surrounded by family surround a person in bed Hospice care is designed to comfort and support patients and their families when the patient can no longer benefit from cure-oriented medical treatment. The typical hospice patient has a life expectancy of six months or less. While hospice often is understood to be a "place to go when you are dying," it more typically allows a dying patient to receive care at home surrounded by family and friends.

Hospice services are provided by a team of trained professionals - physicians, nurses, counselors, therapists, social workers, aides and volunteers -- who provide medical care and support services not only to the patient, but to the patient's family and loved ones. The care addresses the emotional, social and spiritual impact of the disease on the patient and the patient's family.

As the primary health insurer for people age 65 and older, the Medicare program in the Social Security Administration offers certain hospice benefits for end-of-life care. Check with the federal Social Security Administration and your health insurance plan."

Two years ago, I was under hospice care. They provided many sevices such as a Chaplain, Social Worker, cleaning services. I was at a point I could not eat or drink and my digestive process had completely shut down.

I only share this is an example of one scenario. Somehow, I'm still here. I'm not saying your mother will be the same, but, please, don't give up hope. As far as other "treatment" if you approach it as palliative care, it would have to go through the hospice organization, as they will be paid a per diem amount, based on level of care and services. My Agreement included a place for me to sign that said I would not pursue any treatment other than palliative care.

I hope this helps some. My heart goes out to you. I had to make the same decision with my mother in 2000. It wasn't easy and she never felt it was time. I believe she would have benefited by seeking hospice care sooner.

Best wishes.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023