Thanks Christine. I was just hoping that someone may have been treated at the Cleveland Clinic for anything related to this cancer or that perhaps they had seen alternatives to a trach.
My Dad has been through so much that the thought of going backwards so quickly is about more than he can take. The tube is still so horrible for him as it is. I just need alternatives.
His epiglottis apparently is so hard from all of the radiation that it does not move and is actually leaning backwards and blocking some of his windpipe. Perhaps I should post under a different subject.......or just want to know if you can live alone if you have a trach. He would not touch it the last time it was in. My brother and I shared all of the care.
Thank you again


Caregiver to Father:Stage III unknown primary; modified left side neck dissection 2/2006; 8 wk trmts of Erbitux 3/2006 with-37 radition treatments; 11.2010; biopsy of base of tongue results questionable. 9.2013 tumor on left side of tongue; squamous cell cancer. 10.2.2013 Hemiglossectomy(1/2 tongue removed) with reconstruct tongue using left thigh tissue;surgery included IORT.
25 additional IMRT radiation trtmts & 5 wks/chemo. Carbo & Taxol combo.NPO;100% PEG depend;aspiration pneumonia 3/2014