Wishing you both all the very best with everything!!!

I would suggest making a list of every person who offered their assistance. Tell them when you need a hand you will contact them. Dont be shy when asking for help. Others really do care and want to help but often they dont know how. Try your best to have someone stay with Charles as much as possible while he is in the hospital. When a patient undergoes a major surgery like this, they need to have an advocate with them 24/7. Even if you call a friend to stay there a few hours while he sleeps to give you a break. Dont forget you need care too, take some time once in a while just for you. If for nothing else to take a well deserved nap or just a walk to clear your head. Its alot for you too so be kind to yourself. Stay on top of Charles's pain meds. Ask the doc for 2 different pain meds so Charles will never have to wait until its time to get relief. He can switch off and on between the 2 meds and never have to suffer in pain until its the 'right' time.

We are in your corner. Please post when you can, best wishes!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile