Good luck with this Wendy. Sounds as if you are doing all the right things being monitored and so on. I had lichen planus which is like leuoplakia in that it causes non-cancerous lesions which need to be watched. I haven't had a normal mouth for decades which is why I find it hard to monitor myself. A lot of it is numb now but in the past there was always a sore spot somewhere.

Thinking of you. I feel that you will be all right.

1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.