 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF. It looks like you have been thru alot. I may have missed it but I saw you mention radiation but didnt see you mention you had been diagnosed with oral cancer. Where was your tumor? When were you treated?
For some patients the therabyte works and for others not so much. I was one that it didnt really help. There is also a Dynasplint which is similar to the therabyte appliance.
Sorry to see you are dealing with being on the feeding tube. Its no fun! I detest mine but for me, its a necessary evil. Are you are to tolerate the ensure or other vitamin type nutritional drinks?
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
