I'm sure you will get some opinions here, and I think I've seen some for you in another thread. I feel absolutely miserable for you, such a difficult decision. My hope for you is that you will be ok with the decision you make. I decided my first round with this cancer not to get radiation, and my cancer returned. It probably would not have returned if I had done the rads the first time. However I have absolutely no regrets. I took a chance and lost. I was not even close to mentally/emotionally handling it the first time. So, as strange as it sounds, I believe it was meant to work out exactly like it did.
All the very best to you, I will continue to keep track of your progress here on the forum.


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!