Hi, I have just had an Inflammatory Miofibroblastic Sarcoma of the Pelvis removed. About 5 months ago, early April, ulcers began growing in my mouth. These ulcers worsened early June when I was diagnosed with Severe Mucositis. I was hospitalised and as a result of not being able to eat, I lost a lot of weight.
Since June, I have followed a strict mouthcare regime. My radiotherapy was brought forward to mid June in the hope that it may clear up the mouth ulcers. Unfortunately this did not work and I ended up having a Naso Gastric tube inserted. My tumour has been successfully removed since but there is no sign of the ulcers abating.
I am hoping someone may have a suggestion to help clear these up. I use several medicines to numb the mouth before eating, Xylocaine mixed with mylanta and a Cocaine mouthwash. I also use a bicarbonate soda mouthwash post eating. Is there anything else that may help clear them up? All the doctors say it is very rare as was the tumour but no one seems to know when they will go. 5 months of these is doing my head in. Thanks