Robin,

I first thought I must have misread your post - an oncologist referring a 3-month post tx. patient to a GP first. But no, that does seem to be the case. Do they not intend to follow him for many years?

You must get to the bottom of this. I'm hoping that somehow the nurse did not relay the correct message. Oncology office (MO, RO, or ENT) should want to follow your father CLOSELY for all post tx problems. I never heard of an oncology office that does not have a system for seeing established patients outside of routine appointments. You must ask about this directly because this will not be the last question/problem during recovery.

One example, out of many that can develop, MO told my husband to call immediately with any REFLUX symptoms post tx. She would prescribe meds so as not to irritate esophagus/GI tract further.

Please let us know how you make out.


CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin.
1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED
Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016