OP  Supporting Member (50+ posts)
Joined: Jun 2014 Posts: 86 | Hi everyone,
So I called the second NCCC in MI(Ann Arbor) to see what machine they use for radiation and they use an IMRT machine that starts with a V. I asked them if they have tomotherapy (the place we are treating has tomotherapy) and they don't. To tomotherapy seems like it's more targeted and it's more slice by slice radiation.
My brother is expected to start radiation at karmanos on 9/15/14 tomotherapy and chemo. I trust the doctors at karmanos but I always worry . What if there is something better out there? UM said "you have to look at other factors and not just the machine" well the karmanos radiation doctor that my brother has is the chief of his department.
UM said they can squeeze us tomorrow morning for a second opinion but they wouldn't be able to start treatment until 9-19-14.
At this point is it worth another opinion?
22 YO Brother Dx 6/17/14 w. SCC R Lateral tongue
CT scan clear LN 6/20/14
HPV-, non-smoker
R tongue, right hemiglossectomy Surgery 6/24/14
(Not reoccurrence but went to NCCC instead
R neck dissection, tracheostomy, radial free flap, R tongue dissection surg 8/11/14
PT1N2B.3 positive lymph nodes out of 13
Extranodal extension present
9-15-14 IMRT (35x) & Cisplatin (2x) begun
10-21-14 peg in. 10-31-14 1 round of carboplatin
11-4-14 IMRT rx comp
3-27-15 Recurrent tumor in lymph node, L neck diss.
10-29-15 brother passed away, 23 yrs old
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