I am now about 2.5 years out from treatment and honestly cannot complain! I feel very fortunate as I have returned to a normal lifestyle and don't have any serious side effects. I do my fluoride trays at least 3x per week, take synthroid every day, and sometimes have issues with fatigue, but other than that I don't have any real side effects from treatment.
However, given the extensive treatment I had, should I brace myself for serious issues in the near future? I know everyone is different, but I guess I am wondering if people that do not have many side effects in the first couple of years after treatment typically do not have additional delayed side effects later on.

I am at a point in my life where I feel like I mostly can put this experience behind me - I feel that I have beaten the cancer and can live a normal life (although I still am very aware of the risk of recurrence and make sure to pay attention to any warning signs). I am only 27 now and hopefully have a long life ahead of me, so I just want to be prepared. Also, I wonder if anyone knows whether long term side-effects are worse for younger patients diagnosed with cancer (since we have a very long time ahead of us for side effects to develop), or if younger patients fare better because their bodies can adapt better.

I have asked my doctor about this and he seemed to think I should be fine, but given all of the posts I read on this website I am hesitant to trust this opinion 100% - I have found that doctors are not always the best source of information regarding long-term side effects.

I do not mean any offense when I refer to younger vs older patients, there are just very few statistics/little information available regarding young oral cancer patients, since it is a pretty small demographic.

Thanks for your help!


Emily - 24 years old at diagnosis
HPV-, no risk factors
T2N2b Squamous Cell Carcinoma
Left oral tongue, poorly differentiated
Hemiglossectamy, reconstruction, partial neck dissection
30 Radiation treatments, weekly chemo (cisplatin)
1/13/12 last day of treatment
Diagnosed October 2011