I'm not really sure how it developed. One of the residents did say, when my husband asked if stuff was supposed to spurt out my tongue when irrigated, that no it shouldn't do that. So, I'm thinking it may have developed after the PET scan since that is when I started having pain in tongue and floor of mouth, roof of mouth, and ear all in surgical site. One of the on call drs did say it is a salivary gland space that didn't close up. So I guess it may be from SCC surgery. I'm hoping that if I have surgery to correct, that it is successful the first time and not as extensive as the cancer surgery. If the surgeon was aware this was developing into fistula, I wish he would have explained so I could have prepared myself. I feel extremely weak and vulnerable. Not at all prepared. Very depressed about whole situation. Oh well, whatever needs to be done, must be done. I just want to move forward finally. Have to try to think positive and get my strength of will back. Thank you for responding and I hope to have some kind of resolution tomorrow. Glad for you that your results were good in August!
1/14 White spot on tongue Stage 2, SCC Surgery 3/7/14 & 3/31/14 Hemiglossectomy with Neck Dissection Right Lateral Tongue, flap from wrist, thigh graph Trach and dophoff for several weeks 1st PET scan 7/16/14--results, disease not entirely excluded, direct visualization recommended and done. Scheduled MRI for 6 wk follow-up
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