 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | FVW, welcome and I'm sorry for the anxiety. I'm sure we all experienced that and continue to at times.
I'm curious if your place of treatment has an ER. I found going to the same place allowed doctors with experience to address some of the strange things the first several months post treatment. "Regular" ER's just looked befuddled and I made them call the otolaryngologist while I was in the ER if it wasn't at the oncology ER.
There are so many inflammatory responses as the body heals, that it could be anything. Any sudden onset difficulty in swallowing or breathing should be checked out as soon as possible.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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