 Platinum Member (200+ posts)
Joined: Jul 2005 Posts: 207 | Hi Terry,
I too am in NC. I had my work done at REX. If you like, I can call and we can talk. I know several people locally hefre in Raleigh that went through what you are going through. I also had SCC at the base of my tongue. My disection was done on Jan 31. had two drainage tubes. Although it is surgery, it was not so bad. Removal of the tubes was easy and did not hurt at all. I am still numb around the scar, which is hardly noticable I might add, but the numbness is slowly going away. It took me 7 weeks to be able to eat after treatment to remove my PEG tube. I had it taken out the day after my disection. I finished radiation and chemo the first week in December. I think I may be able toshed some light on what to expect from here on out.
Steve
SCC, base of tongue, 2 lymph nodes, stage 3/4. 35 X's IMRT radiation, chemo: Cisplatin x 2, 5FU x2, & Taxol x2. Hooray, after 3 years I'm in still in remission.
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