 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I would contact a CCC and get their opinion. I also wouldn't concentrate very much on the high % but the low without Tx because IMO I would give you a ZERO % chance of survival without Tx. I was a Stage IV, HPV+ SCC patient and I probably have 90% of my pre Tx taste and saliva. I do have some permanent high frequency hearing loss but I don't require hearing aids. My Thyroid was damaged and all I have to do is take a small pill once a day to compensate. That's all of my long term side effects. I know this is all new to you, very confusing and very scary but as long as your docs say do it, then listen to them and do it. We will be with you the entire time and trust me we will make your Tx and recovery as easy as possible.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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