Thanks for the hope...PET scan revealed several new spots all in the neck, lowest is near the thyroid. Hubby is trying to decide if he should have a trach put back in. He's had 4 incidences of waking up and not being able to breathe. One of the spots on the PET labeled "very worrisome" is just above his voicebox and near his epiglottis.. which could be the reason for the breathing incidents..He will start chemo next week. Looks like radiation is not the best option...will officially hear from the tumor board tomorrow a.m.

any advice for him on trach decision? He doesn't sleep well because he's afraid he will die in his sleep from not being able to breathe

Caregiver to husband 53 SCC stage 3 soft palate 2011 Rad, recurrence tongue stage 4 2012 induction chemo, partial glossectomy surgery, cancer back left rad neck dissection 2013, more chemo, allergic to erbitux, cancer back 2014 floor of mouth and jaw, mandibulectomy scheduled 3/5/2014