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| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Im sorry to read of everything you have been thru already. You have had a very long road.
Ive been thru ORN. Its much easier to treat it early rather than wait. By waiting it will only continue to deteriorate. You probably will need more HBO before and after surgery. If its a small area you may not need anything to be rebuilt. Larger areas take large pieces of the jaw bone and replace it with sometimes titanium or even a section of the patients own leg bone. Ive even heard of cadaver bones being used sometimes.
Recovery definitely depends on how large of an area is affected. Hospital stays vary too. If all goes well with a small area of ORN you could get lucky enough to have this done as outpatient surgery.
Please let me know if you need any other info. The main OCF pages has info on ORN as well.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | |
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