 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | [quote=NonaChris]Uptown, sheer will and determination is on your side...do you have support, family, etc? [/quote]
When I see it from my eyes, it wasn't as rough for me as many others had it. I'm sure they all feel the same. It's only as hard as you make it; it's only as easy as you make it. None of us believes we do anything except what it takes. I may only be speaking for myself, but we find the strength we never thought we would have and we emerge on the other side of the speed bumps.
Things may look scary from the newness, but that goes away after a couple exposures to the same thing. It all becomes somewhat redundant and easier to manage.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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