 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Great news, Mr. Fish! I am now actively forcing my dry mouth at night. I make everything shut down so the mucus plugs don't choke me to death and it's working. I retired Mr. Goosucker 5 weeks and 3 days ago. He's mad but I'm glad.
If you are interested in trying a chin strip holler and I can send one to you. I retired it, too. I'm MOCHINE-FREE!
Thank you for ROCKING IT OUT OF THE PARK! It was very inspiring watching you SURVIVE and THRIVE!
Maybe I can grab a cup of Joe with you when I head up there in 2 weeks. I should be around your neck of the woods Sunday and Monday, August 3rd and 4th. Heck, maybe some Q made by YOU...pulled pork style. I can bring the jalape�os!
I will be at BB's Lawnside BBQ Sunday night if you and your family would like to come.
Keep it up! Like a boss, my friend.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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