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| | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | Pain is what lead us to diagnosis. Actually Kris had being having severe pain radiating from his jaw up to his ear for 6 months. His GP had been treating him by manipulating his neck for a trapped nerve! I then insisted on an MRI ......and he got diagnosed. If either of you do get up in the night, and a safe time period has elapsed from the last dose of pain meds, then I think it reasonable for your husband to take another dose. Not long now until treatment starts. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
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