Keleigh whatever works. If he needs to go to a particular hospital or eat a particular food or drink, you have to accommodate as best you can. Remember its extremely frustrating for the patient as well. Every time he tries to eat something he loses it, it quickly gets to the point he will get scared of eating.

He must know in his own mind he needs to eat to survive. If he doesn't come up with an answer he'll get one he doesn't like, the PEG tube up the nose which introduces a whole new set of problems.

I can't speak for your Dad but in my case I was facing the PEG and it scared the hell out of me. I knew if I didn't get those Resource drinks down I was never going to hold weight and the PEG was inevitable. The fear of the PEG drove me to force down those drinks, and I adjusted the meds until I could keep them down.

The practicalities of which hospital is and isn't suitable will work itself out. He will have some practicalities forced upon him by doctors, but the most important battles are in his own head, and I found that to be the toughest battle of all.

Stick with it, you are doing an amazing job!


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.