Hi folks, thanks for all the great, informative and caring responses. Here's "How I Spent My Summer Vacation" so far...
June 11th needle biopsies
June 12th confirm Squamous Cell Carcinoma
June 14th Petscan (lights up at BOT)
June 16th meet with Radiation Oncologist/ confirmation of HPV16
June 18th surgical biopsies done (all come back negative)
June 26th meet with medical oncologist; later in day, second opinion at Dana Farber Cancer Center(more on below)
June 30th meet with nurse, radiation oncologist ; fitted for radiation mask, and CAT scan
I had the good fortune to meet with a panel of four oncologists at Dana Farber on Thursday. Though they said the team treating me had done everything they would do, there was a slight difference of opinion from the radiation oncologist, Dr. Roy Tischler. He takes a more aggressive approach with radiation, and would treat the nasal pharanx as well as the tongue, lymph nodes and tonsils that Dr. Bill O'Meara is aiming for.
Tishler says O'Meara's approach is the standard that most would give. O'Meara says the nasal pharanx is not implicated in many HPV16 cancers among non smokers of causcasian ancestry. He has very rarely seen a pharanx origin, and when he had it was before the testing for separating HPV16 from other types. In O'Meara's take, if one is not asian (subject to other viruses) and does not consume major amounts of smoked meat and fish, then pharanx is unnecessary, and he suggests if I want that to go to Tishler (which is impractical- the ride in during the day is horrendous, so I would face rather than a ten minute commute, more like 2-3 hours of travel time to and from appointments.