A second opinion can never hurt! Do your research to look for highly recommended Otolaryngologist (ENT) who is a recognized oral cancer specialist. You might need to have a family doctor do the recommendation or they might just need a copy of your pathology report to start the process.

Go with a written list of questions to make sure you don't miss anything. Even if it is a situation where you find out you were getting proper care all along at least you'll feel more comfortable with your current provider.

I have PVL, an aggressive condition that regularly results in Squamous Cell Carcinoma. I went to two oral surgeons and two ENTs before settling on the second ENT; all while the cancer was working its way along my jawbone. The problem with rare conditions/cancers is finding a medical professional that has knowledge of the condition or is willing to learn. I like my ENT; even with his impressive resume he is always willing to learn more even if it includes following up on information that comes from the patient.

First remember everyone is different. One thing I have learned is that radiation for me on or near my jaw would be rarely successful. Radiation usually destroys the jawbone without much effect on the cancer. Chemotherapy might be recommended if the cancer has spread to areas where surgical removal is not possible. Ask your physician what their take on this is and if radiation will eliminate the cancer alone or if it needs chemo to help it work better? Also check if chemo by itself will cure you or if its just for maintenance to stop the spread.

Good luck!


Squamous Cell Carcinoma
Lifetime non-smoker, non-drinker, active athlete.