Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hello Mark, Welcome here. It will help you a great deal to read and search the forum. Of course questions are fine, but if you read some of the past threads you will get even more info. The most important thing for him to do is seek competant care. The best outcomes generally are when seen at a top-rated comprehensive cancer facility. It is not policy here to make absolute recommendations about specific hospitals but he has several outstanding facilities within reach. Memorial Sloan Kettering is rated number two in the nation, Johns Hopkins is number three and Dana-Farber is number four. It would be in his interest to get to any of them.
Right now there seems to be a bit of a dispute as to radiation in combination with a couple of new chemo drugs VS surgery then radiation. He will need the advice of a tumor board and even then he may have to make a difficult decision.
I wish you and especially him well in the upcoming days. He will need the support you can give and indeed you will both experience the positive and the not so positive that comes with this event.
We'll be here for you.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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