 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Paul, sorry you had to find us. Many have been down a similar path as you but good news, you will find your journey as unique as you are. While there are a finite number of things you will experience, it may not make any sense when they happen or how intense any one part of this may be with each of us, but you will get through this and it will be easier once you start stumbling upon the side effects of treatment.
We were the same age at diagnosis with the same primary site. It's going to be tough but you have all the resources you need to make it as comfortable as possible.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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