Ron, welcome to OCF! A couple things you wrote make me concerned. After finishing treatment your tumor is almost nonexistant? That does not sound right. The cancerous tumor should have been gone! If you had a scan only one month post rads that was too early to have one. At only one month post rads there would still be significant swelling which would show false results. A follow up scan should be at least 3 months post rads at the earliest to get accurate results.

Do you have an ENT following your after care? If so see them to get checked out. I also suggest going to a major comprehensive cancer center (CCC) for a second opinion. Below is a list of CCC's. They are the countries top hospitals to treat cancer. The CCC facilities all use a team based approach where the specialists get together so everyone is on the same page. If you cant get to a CCC, there is also a list of the top US hospitals. Look for a teaching hospital or university hospital. Find the best medical care you can and get another opinion.


CCC list

US News Best Hospitals List

Please dont worry about what Ive written. I dont know if you have anything wrong or not. I always advise patients to get checked out if they feel something is not right. I hope its nothing serious!

Best wishes!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile