Hiyah mate. I had the same as you. And it was found in two of my lymph nodes.

I had 30 sessions of radiotherapy.

Yes, radiotherapy IS awful - but it could SAVE YOUR LIFE.

I had surgery last December, radio this February March. I attended my graduation ceremony today BSc(Hons) Nursing Practice, and I am going back to work this Wednesday. You can and you will get through it. I did.

I am VERY glad I went through, yes even fought through the radiotherapy, because it is our LIVES we are fighting for.

I would not like to be sitting here now thinking "I wish I'd had it... what if?" - because you'll never manage to shake those thoughts. Cancer haunts your mind as it is....

You will need that PEG, because your mouth will be sore. I had my PEG for 16 weeks (6 weeks during radio and 10 weeks after).

Get ready for a fight, my friend, but it's a brave and important fight that you WILL WIN - you will beat radiotherapy and come out the other side with an improved chance of survival!

Sent with my very best hugs and compassion to you, and all of us with this dreadful illness.


Mar 99 white patch tongue
Dec 11 white patch changed shape. biopsy neg
Sep 13 white patch ulcerated. Biopsy
Nov 13 diag Tongue SCC T2N2BM0 poorly Differ.
Dec 13 Hemigloss. neck dissect.Trach.Caldwell Luc (suspect cysts inside face, neg), teeth out. forearm flap, abdo graft
Feb 14 PEG tube
Feb/Mar 14. 30 x radio 60gy Grade 3 Mucositis, burns, hair loss, very ill. Nerve damage ear neck shoulder
Jun 14 *now* PEG out. Have lost 98 lbs in 1 yr. Anorexia. Dysphagia, liquids only. Dysphasia. Fatigue.