 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Linda, welcome to OCF! You are in the right place for info and support for anything/everything to do with oral cancer.
If you havent been treated at a major CCC I would recommend checking one out. Even if you only go for a second opinion, it would be worth the trip.
PS...As far as your story goes, that would be better suited to a different type of forum? Im sorry, in my opinion, its just a little far off topic for this site. I would much rather understand your situation and help you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
