OP  "OCF across the pond" Supporting Member (50+ posts)
Joined: Jun 2014 Posts: 56 | Had a long chat with my consultant. He said that the oncologist would definitely have given me either Cisplatin or Cetuximab, had the pathology warranted it. However, it was felt not to be needed. I do trust their decision, even though the worrying part of me wonder if I should have had it. I have to trust their superior knowledge. I've been under this team since the start, nearly 3 years ago, and I know they would never, ever cut corners.
Mar 99 white patch tongue
Dec 11 white patch changed shape. biopsy neg
Sep 13 white patch ulcerated. Biopsy
Nov 13 diag Tongue SCC T2N2BM0 poorly Differ.
Dec 13 Hemigloss. neck dissect.Trach.Caldwell Luc (suspect cysts inside face, neg), teeth out. forearm flap, abdo graft
Feb 14 PEG tube
Feb/Mar 14. 30 x radio 60gy Grade 3 Mucositis, burns, hair loss, very ill. Nerve damage ear neck shoulder
Jun 14 *now* PEG out. Have lost 98 lbs in 1 yr. Anorexia. Dysphagia, liquids only. Dysphasia. Fatigue.
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