 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Estelle, as a mathematically inclined personal my survival rate was 100%. Mine was moderately differentiated which meant nothing to me. Either it is or it isn't is what I felt.
I was diagnosed July 18-21, 2003. July 18 I had an incisional biopsy and I was told it looked like TB. Monday, July 21, I got THE call.
I have "worried" about cancer a few times since then but mostly long ago, during the first year or two. It was from the trauma of everything from diagnosis through the first year.
This is the most positive perspective I can give you. My mind made up a lot of things when it could.
Hang in there and try to get your kind past the brutality of treatment. Things will start looking much better. I also lost 85 lbs during treatment and 96 lbs 8-9 years out.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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