Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Hi Robyntc and welcome to the site. You didn't mention how long it has been since she completed treatment and that would help us a lot to give suggestions appropriate to where she is, but here are a few things that I know anyway. First she should be seeing a nutritionist on a regular basis. It's probably not probably not her tastebuds wreaking havoc but thrush and/or maybe even ulcers from the radiation. When was the last time she saw the ENT? If it has been a while he (or she) should be contacted right away. If it is thrush, it must be managed quickly. It is very common post treatment and in people with dry mouth. Antibiotics can make it worse if she is taking those as well.
Most of us were pretty angry and depressed at that stage. I would talk to the oncologist or even get a referal to a psychiatrist to evaluate how she is responding to the antidepressants. She may well be undermedicated or need a different medication.
If she is early post radiation than it can be a couple of months before she turns the corner and progress is very slow - she may only notice slight changes in 3 week increments (and I'm basing this on a 50+ year old's experience).
God bless her for getting through it- it's a tough road at any age. I give her my personal promise that it will get better.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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