"OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hi.. sorry I didn't comment earlier - it's been a crazy few weeks for me. IT WILL SHRINK. Mine too was WAY TOO BIG. My surgeon ( a terrific dr. BTW) said don't worry we can debulk it. WELL - not unusual but I was less than enthusiastic at the thought of allowing him in my mouth with a scalpel (unnecessarily) When I went to visit my plastic surgeon for my last visit way back (2 years ago) I repeated what my Surgeon/ENT said. He said NO!!! radiation shrinks tissue - leave it. He was quite right. three years out it is fine. I do film work and have always been quite concerned about a lisp.. over the last few years it has shrunk. I was recording a bunch of lines for a voice over audition a few days ago and listening back I had NO slurring and no lisp. It just takes a while. Mind you this is very much dependent on how good your surgeons are. I had a third to half of my tongue removed. So it takes time. Things like temperature, and lymphedema can affect it. Once you get a clear scan, you can start with lymphatic massage. This will help with your shoulder and neck and tongue. Hugs. It will improve.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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