Christi, I feel so bad for you having to deal with all this! But you've come to the right place for support and advice from people who've been there.

I think most of us would recommend at this point that you do get another opinion, preferably at a Comprehensive Cancer Center. Here's a list taken from the OCF main page:

http://www.oralcancerfoundation.org/resources/#centers

It's a good starting point. If you can't find one near you please let us know where you are and someone in your area might be able to suggest something.

Hang in there and welcome to our family!


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18