Hello Tom, and welcome to the family; it's good to have another survivor/fighter in our midst.

Your story is basically a carbon copy of mine albeit a few months later. Only two differences 1) my state doesn't have a medical cannabis law. You are the first on the forum I've read about that had the option available. 2) I had no lymph node involvement so no chemo. Lots here on the forum thought I should have chemo anyway, but my docs said nope.

Back in your first post you mention current problem rehab ROM in right shoulder. I presume that means range of motion, if not please clarify. I didn't have any shoulder problems from disease or treatment, so I'm a little curious about yours.

You mentioned you're about 5 weeks since last rads and the symptoms you are having at this point. I am now 5 months post rads and about the only symptoms left are really thick sinus drainage that sticks in upper throat (above and behind uvula). It feels like dried glue. It happens most notably at night while sleeping. I use a sinus irrigator from NeilMed and that loosens it enough to clear it. I also use a bedside humidifier at night while sleeping.

Most of my taste has returned, even the savory part of the taste spectrum (steak & cheeseburgers) which many told me would be the last to return. Sadly the only thing I've noticed that still tastes bad is Blue Bell ice cream Moolineum Crunch (which before cancer I considered a real treat).

Outside of that, no post treatment symptoms remain. I lost 42 pounds during treatment and have kept 38 of them off.

Keep fighting, it gets better with time.

Tony


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good