 "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | I had it, but it didn't get bad until week 6 of treatment; then it stuck around for a good month after treatment ended.
Some things aggravated it more than others; iced tea really made it flare up. Though milk felt soothing to drink with meals I've heard it also makes the mucositis worse.
Fortunately all I needed to get through it was oral lidocaine, and then mostly before meals (and sometimes also during middle of a meal).
I did keep a small bottle of it in the car so I had it available whenever away from home.
take care, you will get through this.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
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