Reading this thread gives me a grin. I never got either the PEG or the Metallic taste, I just lost my entire sense of taste completely; exactly like there was a switch in the line between the taste sensor and the brain; and someone abruptly turned that to "Off." That was sometime in Sept, '09.

There was one plus to this, I was given a case of Jevity (the liquid nutritional mix given through a PEG) which I doubt I could have tolerated due to the taste, which fortuitously for me, was not an issue at the time.

In the year that I had no recurrences, taste returned somewhat, starting with Chocolate (which has faded in and out over the time since my first recurrence in Feb, '11) I attribute this to the large amount of chemo I got in those following years up to mid-'13 when Xeloda (5FU) stopped working for me.

Oddly enough, while I could taste chocolate in food or drink, eating a chocolate bar was like eating wax. Milkshakes, on the other hand, yummmmmm...!

In the last year, I had only radiation and my taste returned to something >90%. Some meats lose their taste after a number of bites and some foods seem to have permanently altered tastes, but by and large, I'm as close to "Normal" as I ever was wrt taste.


My intro: http://oralcancersupport.org/forums/ubbt...3644#Post163644

09/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!