My husband is about 1/2 through his treatment. He can only swallow water at this point to we are feeding him through his peg. I am very frustrated with the fact that the only feeding tube bags I can find all taper down dramatically at the connector end. I have chosen to feed him the same food he would be eating if he could. I wouldn't feed him all the chemicals found in feeding formulas if he were well, and I certainly wouldn't feed him that now that he is sick. I do blend in a vitamix and even stain the fluid before I give it to him. Even really small particles can get stuck. I am using the Kangaroo bags with the large bore tubing but the connection tip becomes so small. Seems to me these bags are designed to support a multimillion dollar feeding tube formula business. I have tried to cut the tiny end off the connector but the plastic simply krimps down and nothing can come out. what have others in my situation done. So far my husband has only lost 4 pounds total since treatment started so I must be doing something right.
Husband: HPV16+ SCC base of tongue 2 nodes+ 7 Erbitux doses, 70 gry completed June 9,2014. Now we wait!
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