Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | MLC - It really is SO important to make sure to check and re-check everything that is going on with meds, nutrition, liquids - what goes in and what comes out as well. Different people react differently so it's important for your husband's doctors to know this. Reactions can change to different meds. My son had such fatigue, and slept so much I got to the point of checking his breathing. I had to wake him to take meds and when he resisted my "telling him what to do", I made a chart of all the meds and his liquid and nutrition intake and made sure he checked anything off that he did so he wouldn't think it was his mother telling him what to do. (I had my own copy so I could verify with his.) On the chart I also listed all the doctors' names and phone numbers as well as the nice office assistants so that when I called them, I was able to let them know what was happening and I could mention the name of the last person I talked to at the office. This really helped. BTW - as your husband's caregiver, you have the right to talk to his doctors and express your concerns.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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