Welcome to OCF, Tippie! Im sorry you have joined our online family. We will help you with info and support to get thru the upcoming battle.

Before you decide on your treatment plan, at least get a second opinion. Below is a list of comprehensive cancer centers (CCC). They are the countries top hospitals to treat cancer. The CCC facilities all use a team based approach where the specialists get together so everyone is on the same page. If you cant get to a CCC, there is also a list of the top US hospitals. Look for a teaching hospital or university hospital. Find the best medical care you can and go with it.


CCC list

US News Best Hospitals List

There have been plenty of members who have had the same diagnosis as you regardless of it being HPV+ or -. At this time the treatment is all the same, hopefully that will change in the future.

Right now you are going to get super busy running to all kinds of appointments. You need a full blood count including thyroid and testosterone if you are male. See your dentist for a thorough exam and cleaning. If you have any teeth that arent the best, they probably should be pulled now to avoid bigger issues down the road. While at your dentist, a mold needs to be made for flouride trays.

Focus on your intake and eat all your favorites. Dont be concerned about weight gain, its ok as you will probably lose some weight during treatments. If you are on the slim side considerably increase your calories to bulk up a little.

I know getting a cancer diagnosis is not something you had ever expected. A wide range of emotions settle in over the first few days after hearing those awful words. Im glad you are here so we can help you to get thru your treatments.

Bets wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile