Hi WVS,

Like others, I am very sorry to hear of your diagnosis. Yours sounds just like mine, and your primary tumor is probably in the base of your tongue.

Cisplatin (named because it is a platinum - a Heavy Metal - based agent, expect severe nausea (the severity comes from the fact that the radiation will also make you nauseated), complete loss of taste temporarily, and neuropathy in your extremities (finger tips and toes), as well as hearing loss.

IF your Medical Team does not raise these neuropathy issues; ASK them to explain why not. You must be your own advocate here, don't expect them to advocate for you.

And DO let then know the minute you thing you are experiencing either unexplained feelings in your extremities or hearing loss (or tinnitus.)

This will not go down as one of your most cherished memories, but on the other hand, it will not be as bad as I make it out to be. It will be bad, but is very doable. You will survive, and the effects will pass, leaving normalcy in it's aftermath.

Be vigilant to avoid getting in the self-pity trap as you wade through all the unpleasantness and you will be fine.

Good luck,

Bart