I finished treatment end of September 2013 - radiation and chemo. The biopsies continue to come back negative, have had three in a period of four months (January 2x and April 1x). Tissue taken from left tonsil fossil, back of tongue and by voice box. Pet Scan is inconclusive. I will be going for another CT Scan in a couple of weeks.

Docs say there is necrosis - dead tissue - which seems to be causing them concern. I guess if there is no cancer, then tissue should be looking pink and healthy?

I'm leaning on the biopsy results that there is no cancer, pathologist said last biopsy there were good samples and ENT surgeon said he took plenty of samples.

I'd appreciate your thoughts/comments on this. Thanks.




61 year old female, DX July 2013 Tonsil/BOT Stage 3 HPV16 Clinical trial, IMRT 35x (six treatments within five day period)
Cisplatin 1x Cetuximab 3x
Biopsies negative, Treatment team have Clinical concerns. Feeding tube, inability to swallow without aspirating.
Life has changed - happy to be alive!