i had my PET scan and MRI this week and got results. my oncologist is still convinced it is cancer my ENT not so. he is going to do a biopsy and excision hopefully soon to be 100% sure. mean while he has upped my targin dose to 40/20mg and i am on 600mg of lyrica a day. and still the pain is here. the nerve damaged is my lingual so they told me at the pain clinic after proding inside my mouth. he said maybe a nerve block could help but thats all he said. any way i will wait patiently for the biopsy and see what happens. i have already lost 6 kg in just over a week, cause i cant eat much at all. i have just slightly got the pain under a bit of control after having a yogurt for my lunch. frown

november 2013 biopsy/ partial exision on right side tongue
confirmed scc
dec 11 2013 surgery to remove cancer
19mm by 7mm
no RAD
bad nerve pain caused by tumor growing on nerve
21/2/14 started Lyrica pregabalin
17/4/14 biopsy\ partial glossectomy
stage 4 tumor left side tongue and floor of mouth.
2/6/2014 opn to get clear margins/ bilateral neck dissection. bone removed from jaw & free flap on floor of mouth & more tongue removed.
21/7/14 radiation and chemo