Paul
Sorry to hear that sounds like you were pretty sick as well. You are correct my father had essentially 3 rounds, eternal beam 8 years ago, IORT during surgery and IMRT after surgery. We knew we would be challenged but none of the doctors including the RO said it would be this bad. My Dad is struggling to think that the radiation treatments the second time around were a good choice as we all are. Are you still NPO and if so do you receive all of your nutrition via PEG? I know alot of all of this is a person's outlook(ie glass half full or glass half empty kind of person) but how do you deal with everything you have been through when it comes to daily living. How have you prevented the return of aspiration pneumonia?
Thank you for taking the time to respond. Kim

Caregiver to Father:Stage III unknown primary; modified left side neck dissection 2/2006; 8 wk trmts of Erbitux 3/2006 with-37 radition treatments; 11.2010; biopsy of base of tongue results questionable. 9.2013 tumor on left side of tongue; squamous cell cancer. 10.2.2013 Hemiglossectomy(1/2 tongue removed) with reconstruct tongue using left thigh tissue;surgery included IORT.
25 additional IMRT radiation trtmts & 5 wks/chemo. Carbo & Taxol combo.NPO;100% PEG depend;aspiration pneumonia 3/2014